Jennifer Dornan-Fish is marking two years grappling with the long-term impacts of COVID-19 on her body.
She said her road to recovery from the virus has been mired in a “bewildering array” of agonizing and debilitating new symptoms — which gradually emerged after she had already fended off her initial infection.
A couple weeks after testing positive in March 2020, it seemed like Dornan-Fish had made it mostly out of the woods. However, the healthy 46-years-old said she struggled with COVID fatigue and labored breath but avoided hospitalization.
She said she was “convincing myself I was on the mend” and was anxious “to jump back into” her busy life finishing her next book and homeschooling her son. But then, “everything started going haywire.”
Dornan-Fish told ABC News her doctors have diagnosed her with Post-Acute Sequelae of SARS-CoV-2 infection (PASC) — the official term for long COVID symptoms. She has been tested for autoimmune issues like lupus, multiple sclerosis, Ankylosing spondylitis, along with blood cancers, to rule other, non-COVID causes out.
“It wasn’t like I just crashed all at once,” Dornan-Fish, now 48, said. “One little thing went wrong. Then another. And it just got worse and worse until – I have honestly very little memory of the first few months. I was so out of it.”
She began getting painful, itchy rashes on her thigh and shoulder, and her gums.
Then came “coat hanger pain” in her shoulders and neck. Then the brain fog. The front of her throat felt tight, as though an invisible hand was clamping down on her breath.
“I call it the ‘COVID choke,'” she said.
“I could barely talk,” she said. “The brain fog has really, to be honest, been the most disturbing symptom of them all. I make my living writing, thinking, so to not be able to do that was terrifying.”
Getting out of bed for more than a few minutes would take everything she had.
“My husband had to feed me, he would bring me meals. I could barely sit up. I couldn’t wash myself. I couldn’t take care of my child,” she said. “I was just surviving.”
In that first year of the pandemic, scant medical treatment existed for the mysterious virus which had overrun intensive care units around the world — let alone a tried-and-true way to fight COVID’s prolonged effects.
Dornan-Fish saw a “round-robin” of specialists — a “trial and error” process, which she said has been exhausting.
“I tried a million different things,” she said.
She started getting new allergies: she was hospitalized for a reaction to baby aspirin, which she had been taking to avoid the blood clots she had heard were associated with COVID. She had a reaction to her family’s longtime kitchen cleaner.
“I almost went into anaphylaxis from a scented trash bag,” she said.
About nine months out from her initial COVID infection, Jennifer started having tremors.
“My doctor called them ‘seizure-like,'” she said. “We don’t know what they were.”
Over time, her allergies seemed to start improving. Her brain fog got a little better. But the tremors got “much worse,” and took new forms.
“I’m not actually shaking on the outside, but it feels like a vibrating cell phone in my chest. Or, like there’s an earthquake inside me,” she said.
“For a little while — and it has gotten better — but a bird would cheep outside the window, and I would jump,” she said. “Not to be glib, but I’ve lived in the jungles of Belize and have killed poisonous deadly snakes with machetes. Like, I do not jump at cheeping…
Read More: COVID long-hauler marks 2 years grappling with ‘bewildering array’ of agonizing